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Living with Fibrosing Mediastinitis

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Tuesday, May 15, 2012

Fibrosing Mediastinitis Conference 2012

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Contact Me

My name is Tami and I was diagnosed with Fibrosing Mediastinitis in 1999. I am registered nurse and am interested in hearing from others who live with this disease.

Feel free to contact me at tjaskren@gmail.com
I cannot give you medical advice. I am not a comprehensive source on experts nor can I tell you what your best course of treatment would be.





What is Fibrosing Mediastinitis?

Fibrosing mediastinitis (FM) is a rare disorder characterized by the invasive proliferation of fibrous tissue within the mediastinum.
FM frequently results in the compression of vital mediastinal structures and has been associated with substantial morbidity and mortality.
Its pathogenesis remains unknown. However, in North America most cases are thought to represent an immune-mediated hypersensitivity response to Histoplasma capsulatum infection.

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  • Derailed: A book about living with FM
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  • Fibrosing Mediastinitis National Organization for Rare Disorders, Inc.
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